kalm wrote: ↑Wed Feb 12, 2025 4:26 pm
This hit my inbox today the ALS Association. My mom passed away from Bulbar ALS in 2017.
We need your help urgently to protect funding for ALS research. Proposed cuts to vital research funding could derail years of progress, putting lives at risk and setting ALS research back decades.
Why this matters: The proposed cuts to the National Institutes of Health (NIH) would cripple the infrastructure and workforce necessary to continue groundbreaking ALS research. NIH and other government agencies are the largest funders of ALS research, investing in over $200 million annually.
Additionally, cuts to agencies like the Centers for Disease Control and Prevention (CDC), the Department of Veterans Affairs (VA), and the Centers for Medicare & Medicaid Services (CMS) would also harm essential programs that people living with ALS rely on every day.
Turning ALS from fatal to livable – and curing it – requires robust investment in research and access to high-quality care. Slashing these resources puts both scientific progress and the well-being of individuals living with ALS in jeopardy.
What you can do: It’s time to act — Congress must reject these cuts to ALS research and support the funding necessary to save lives. Contact your Members of Congress and urge them to protect ALS research funding. Share why this issue matters to you and to those living with ALS, including our veterans who are disproportionately affected.
Not trying to be a dick here, but do you see now what I was saying about Musk and his Rockets and Cars needing funding? Same thing here. Nobody can make money doing the research for ALS, so it's needs help to get to the finish. Different products, but same path.
On a separate note, I don't buy "years of research" will be lost without funding. Let's see what shakes out.